I just wanted to say how relieved I feel to have discovered Lipoedema UK. I actually feel a glimmer of hope for the first time since my lipoedema was diagnosed.
I had breast cancer 5 years ago and have undergone two operations, chemotherapy and radiotherapy and am still having regular check ups. However, although having cancer is obviously pretty traumatic, for me it pales into insignificance compared to the daily trauma of living with lipoedema.
When I found my breast lump I was seen by a consultant within days, operated on within weeks, and the whole treatment process ran like a well-oiled machine. The health profession knows what cancer is and how to deal with it. I have yet to find a medical practitioner who knows anything at all about lipoedema, apart from Prof. Mortimer. When my lipoedema was diagnosed, after seeing several different doctors and therapists, and a long wait to see a consultant, I felt a sense of total hopelessness because it seemed nothing could be done and there was no research into this awful condition. I feel ugly and embarrassed by my lipoedema in a way that I never felt about having a disfigured breast or losing my hair, I find it more depressing and isolating on a daily basis than I did having cancer.
So I am just so pleased that Lipoedema UK exists and I feel a tiny bit hopeful and less alone with my Lipoedema.