A survey by charity Lipoedema UK highlights that a bleak future could await UK women with a debilitating condition called Lipoedema because life-changing treatments and surgery are not available on the NHS. Many risk their future and that of their family by taking out loans and spending savings to finance private treatments.
Preview results of 2019 Lipoedema UK survey report are available to download here.
Anne Henry, a lipoedema sufferer, presented her story about her problems getting a diagnosis and treatment to the Scottish Parliament Cross Party Group on Women’s Health. Read her story here.
This issue was covered on BBC News on Saturday, 9th February 2019 in a piece that contrasted Anne and another woman who has had liposuction treatment for her lipoedema:
There is an alternative version of this BBC News report, which is worth a look.
Lipoedema UK also conducted a focus group with patients in June 2018 to explore how patients felt liposuction had impacted on their lipoedema and their life. Download the focus group report.