Lipoedema Patient Stories

Personal stories can be inspiring, enlightening, and enjoyable. If you would like to share your member story to inspire others, please email it in word format to info@lipoedema.co.uk. We reserve the right to edit for clarity and brevity.

My struggles to get a diagnosis and treatment – Anne

My name is Anne Henry, I am 47 years old and was diagnosed with Lipoedema in Aug 2017 around 30 years after I first noticed signs that my body wasn’t quite the same as other girls the same age. Within those 30 years I have visited my GP surgery on many, many occasions and seen lots of different GPs. When I mentioned that my legs were painful to touch and very swollen, I was always given the same standard answer “you need to lose weight and exercise more […]

Sandra’s Story

I have only recently discovered that I have Lipoedema. Initially I was shocked and I didn’t want to know anything about it. I then became angry, so angry that I had believed for 40 years that I was a greedy, fat person who had created such large and ugly legs. […]