Patient Stories

Personal stories can be inspiring, enlightening, and enjoyable. If you would like to share your member story to inspire others, please email it in word format to info@lipoedema.co.uk. We reserve the right to edit for clarity and brevity.

____________________________

My struggles to get a diagnosis and treatment – Anne

My name is Anne Henry, I am 47 years old and was diagnosed with Lipoedema in Aug 2017 around 30 years after I first noticed signs that my body wasn’t quite the same as other girls the same age. Within those 30 years I have visited my GP surgery on many, many occasions and seen lots of different GPs. When I mentioned that my legs were painful to touch and very swollen, I was always given the same standard answer “you need to lose weight and exercise more […]

My Journey to the Lipoedema UK Conference – Liz

Travel with Lipoedema can be very challenging. The main reason I was travelling was to attend the Lipoedema UK 2014 AGM and conference, in London. It was a bit scary for me as I hadn’t been into Central London since I was a child, and certainly had never had to find my way about on a mobility scooter […]

My Lipoedema Legs – Sandra

I have only recently discovered that I have Lipoedema. Initially I was shocked and I didn’t want to know anything about it. I then became angry, so angry that I had believed for 40 years that I was a greedy, fat person who had created such large and ugly legs. […]

Glimmer of Hope – Annie

I just wanted to say how relieved I feel to have discovered Lipoedema UK. I actually feel a glimmer of hope for the first time since my lipoedema was diagnosed. I had breast cancer 5 years ago and have undergone two operations, chemotherapy and radiotherapy and am still having regular check ups. However, although having […]