PATRON, Professor Peter M Mortimer MD FRCP
Professor of Medicine to St George’s University of London, Consultant Skin Physician to St Georges’s Hospital and Royal Marsden Hospital, London, UK
Professor Peter Mortimer trained in Dermatology in Sheffield and Oxford. He has been ‘Physician to the Skin Department’ at St George’s and consultant skin physician to the Royal Marsden Hospital since 1986 and as Professor of Dermatological Medicine to the University of London since 2000. He is a founder of both the Lymphoedema Support Network (LSN) and British Lymphology Society (BLS) and was appointed the first Clinical Training Fellow in Lymphovascular Medicine in the UK.
PATRON, Dr Kristiana Gordon MBBS, MRCP, CLT,
St George’s Hospital, London.
Dr Kristiana Gordon is a Consultant in Dermatology and Lympho-vascular medicine at St Georges’s Hospital, London. She has worked with Professor Peter Mortimer and his team since 2006 and is the first doctor in the UK to undertake a Fellowship in Lympho-vascular Medicine. She has recently completed her doctorate in the field of Lymphoedma and Lipoedema. Her current research includes understanding more about the genetic abnormalities that may cause Lipoedema.
TRUSTEE/CHAIR, Sharie Fetzer
Sharie’s frustration at the lack information on suitable treatments for Lipoedema and her desire for more research into the way it effects every aspect of peoples lives led to Lipoedema UK’s Big Survey 2014. Her goal is to raise awareness amongst the medical professional to ensure that lipoedema is diagnosed as early as possible for future generations. Sharie is especially proud of working with the Royal College of GP’s (RCGP’s) to develop Lipoedema UK’s and the RCGP’s elearning course on Lipoedema.
TRUSTEE/TREASURER, Kate Forster, Chartered MCIPD
Kate was diagnosed with lipoedema in autumn 2015, following the late diagnosis of her mother with lipo-lymphedema, not just lymphoedema. As she grew up, Kate and her family experienced the impact of her mother’s undiagnosed and inappropriately treated lipoedema and lymphoedema; Kate is therefore passionate about increasing access to early diagnosis and appropriate treatment. She had lipoedema surgery in Spring 2016. Kate is currently Vice President, Global Human Resources, for a medical device manufacturer and is a Chartered Member of the Chartered Institute of Personnel and Development. Kate also volunteers for several other charities and community groups.
TRUSTEE, Carmen Zgouras
Carmen Zgouras is an acclaimed producer of live silent cinematic concert screenings featuring new orchestral scores. In February 2016 she staged a Philharmonia Live Concert Screening of the silent epic of 1927 “Love” based on Tolstoy’s Anna Karenina, starring Greta Garbo following the 2012 Southbank success of “Faust” Live Concert Screening. Carmen Zgouras is also a Philanthropy Advisor. She is advisor to the The Andrea Bocelli Foundation, The British Red Cross International Committee and produced The Luciano Pavarotti Tribute Gala and The La Vie En Rose Gala with Annie Lennox. She also helped create the Independent Film Trust and has worked as a Special Advisor to The Oxford Philharmonic Orchestra and Outdoor Trust for The Queen’s Walkway Appeal in Windsor.
TRUSTEE, Lucinda Evans BSc (Hons)
Lucinda has an honours degree in Biomedical Science from the University of Brighton. Following her diagnosis of lipoedema when she was 18 she had successful non cosmetic tumescent liposuction when 21 and 23. She is currently studying for a Phd in Musculoskeletal Biology and eventually hopes to study the potential links between Lipoedema, gait and Osteoarthritis.
TRUSTEE/FOUNDER, Suzanne Evans
Suzanne was diagnosed with Lipoedema in May 2011 – 35 years after her symptoms first appeared. The shock of discovering she had a genetic condition and that her long years of dieting had not just been worthless but had almost certainly made her condition worse led Suzanne to work with St George’s hospital to create Lipoedema UK.
TRUSTEE/NURSE CONSULTANT, Kris Jones, RGN, ENB 931, ENB N34, Post Graduate Diploma Lymphoedema Practice. Joint Founder & ManagerLymphCare UK
Kris started working in Lymphology in 1998 and is now a Clinical Nurse Specialist and Director of LymphCare UK Community Interest Company the first stand alone Lymphoedema Service to have spun out of the NHS. She has a long established interest in the diagnosis and management of Lipoedema and has been involved in ensuring Lipoedema treatment is recognised within service specifications. She also has experience of living with Lipoedema so brings a personal and clinical perspective. Kris is a respected trainer on compression and treatments for Lymphoedema and Lipoedema.
NURSE CONSULTANT, Mary Warrilow, RGN, BSc (Hons), QN, Joint Founder, Managing Director & Registered Manager, LymphCare UK
Mary has varied nursing experience including 23 years nursing years working in the Community setting as a District Nurse and Primary Care Matron before specialising in Lymphoedema. Mary was Joint Founder and Managing Director of LymphCare UK a nurse led Community Interest Company and Social Enterprise based in the West Midlands that provides comprehensive lipoedema and lymphoedema management. Mary has won a number of nursing awards including the title ‘Queens Nurse’ from the Queens Nursing Institute (QNI) and is passionate about raising the profile and access to services and treatments for patients with lipoedema and lymphoedema. Mary now works as an independent Nurse advisor for Lymphoedema and Lipoedema and provides specialist advice for many of Lipoedema UK’s medical enquiries.
BOARD MEMBER, Heather Wright
Heather is a Senior Business Development Manager for Sigvaris Britain Ltd who produce compression hosiery used in the treatment of lipoedema. She is very proud to be a part of Lipoedema UK and hopes to be able to help increase diagnosis rates and raise awareness of such an unrecognised condition which affects so many women. With her experience of working within the industry who aim to help women with lipoedema and also being a lipoedema sufferer herself she hopes she will be able to help Lipoedema UK push forward with more research into the condition.