Lipoedema UK – News

Andy Diagram of James presents a cheque to Lipoedema UK

Lipoedema UK receives donation from the band “James”

Our wonderful member Kay Dickinson has helped raise a fantastic amount for Lipoedema UK via her friend Andy who is a member of the internationally renowned band ‘James’. Andy has seen Kay’s struggle with Lipoedema and when they played, he put together 2 illustrated set lists […]

Lipoedema UK member featured in Legs Matter video

Lipoedema UK’s member Emily is featured Legs Matter Awareness Week 2019

Watch Legs Matter’s short film about people sharing their own experiences of the emotional and practical aspects of living with leg and foot problems. Lipoedema UK’s member Emily is one of those featured.

Women in dire need denied surgery and treatments

A survey by charity Lipoedema UK highlights that a bleak future could await UK women with a debilitating condition called Lipoedema because life-changing treatments and surgery are not available on the NHS. Many risk their future and that of their family by taking out loans and spending savings to finance private treatments. Preview results of […]

Exciting New Survey on the Design and Compression Requirements for Lipoedema

Thanks to everyone who has completed this survey which is now closed.  The study is being done in collaboration with Lipoedema UK,  Jobskin (a UK based specialist compression garment manufacturer), Dr Lisa Macintyre and Ilka Paling from Heriot Watt University, School of Textiles and Design and builds on Lipoedema UK’s own surveys and Focus Group work. The […]

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Lipoedema UK Featured In Health Europa

I was delighted and honoured to get Lipoedema UK featured in the Health Europa Quarterly Issue 04 this month. Below is a quick section of the interview and article. I have included a link to the full publication at the bottom of this page.  Lipoedema is a chronic condition whereby fat cells abnormally build up in […]

Lipoedema featured in the East Anglian Daily Times

In December, 2016 the East Anglian Daily Times carried an article about Lipoedema. In an interview with the publication’s Lynne Mortimer, Ipswich woman Casey Whiting talks about lipoedema. Casey despaired of ever being able to exercise enough to shift the fat from her legs but then, after years of discomfort and self consciousness, she was […]

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Lipoedema Featured In Daily Mail Health – 27 Sept, 2016

Hitting puberty, what troubled Laura Childs was not her skin, but her legs, which began to balloon completely out of proportion with the rest of her body. ‘It was much more exaggerated than just being pear-shaped,’ recalls Laura, 37, a local authority administrative officer, who lives in Dover with her husband, Dean, 42, a trainee […]

Announcing a generous $1.5 million dollar gift for Lipoedema Research

December 2015. The University of Arizona, Tucson, is pleased to announce that they have received a generous donation from Alumna Felicitie Daftaur, in order to aid the study of atypical fat tissue, including Lipoedema. Dr. Karen Herbst MD, PhD, is an internationally noted UA researcher and is an associate professor of medicine in the UA […]

1st International Symposium on Lipoedema

The 1st International Symposium on Lipoedema, held in New York on Friday 17th & Saturday 18th April 2015 brought together Prof Etelka Foldi from the Foldi Clinic in Germany, Dr Mark Smith and Dr Bill Ripicci of the Friedman Center for Lymphoedema Research & Treatment, NY, Dr Stanley Rockson of Stamford University, Dr Karen Hebst, […]

Impressed by you

Is a truly remarkable book by Els Brouwer and Joyce Bosman from NLNet, the Dutch network of people with lymphoedema and lipoedema. Els and Joyce wanted to break the taboo and show that you are allowed to be beautiful with lipoedema or lymphoedema.  In the 28 impressive personal portraits,  patients tell their story of how they deal […]