Patrons & Lipoedema UK Board
PATRON, Professor Peter M Mortimer MD FRCP Professor of Medicine to St George’s University of London, Consultant Skin Physician to St Georges’s Hospital and the Royal Marsden Hospital, London, UK
Professor Peter Mortimer trained in Dermatology in Sheffield and Oxford. He has been ‘Physician to the Skin Department’ at St George’s and consultant skin physician to the Royal Marsden Hospital since 1986 and as Professor of Dermatological Medicine to the University of London since 2000. He is a founder of both the Lymphoedema Support Network (LSN) and British Lymphology Society (BLS) and was appointed the first Clinical Training Fellow in Lymphovascular Medicine in the UK.
PATRON, Dr Kristiana Gordon MBBS, MRCP, CLT, St George’s Hospital, London.
Dr Kristiana Gordon is a Consultant in Dermatology and Lympho-vascular medicine at St Georges’s Hospital, London. She has worked with Professor Peter Mortimer and his team since 2006 and is the first doctor in the UK to undertake a Fellowship in Lympho-vascular Medicine. She has recently completed her doctorate in the field of Lymphoedma and Lipoedema. Her current research includes understanding more about the genetic abnormalities that may cause Lipoedema.
TRUSTEE/CHAIR, Sharie Fetzer
Sharie’s frustration at the lack information on suitable treatments for Lipoedema and her desire for more research into the way it effects every aspect of peoples lives led to Lipoedema UK’s Big Survey 2014. Her goal is to raise awareness amongst the medical professional to ensure that lipoedema is diagnosed as early as possible for future generations. Sharie is especially proud of working with the Royal College of GP’s (RCGP’s) to develop Lipoedema UK’s and the RCGP’s elearning course on Lipoedema. Professionally Sharie’s managerial roles included working for a leading firm of occupational psychologists and major retailer.
TRUSTEE/TREASURER, Kate Forster, Chartered MCIPD
Kate was diagnosed with lipoedema in autumn 2015, following the late diagnosis of her mother with lipo-lymphedema, not just lymphoedema. As she grew up, Kate and her family experienced the impact of her mother’s undiagnosed and inappropriately treated lipoedema and lymphoedema; Kate is therefore passionate about increasing access to early diagnosis and appropriate treatment. She had lipoedema surgery in Spring 2016. Kate is currently Vice President, Global Human Resources, for a medical device manufacturer and is a Chartered Member of the Chartered Institute of Personnel and Development. Kate also volunteers for several other charities and community groups.
TRUSTEE, Carmen Zgouras
Carmen Zgouras is an acclaimed producer of live silent cinematic concert screenings featuring new orchestral scores. In February 2016 she staged a Philharmonia Live Concert Screening of the silent epic of 1927 “Love” based on Tolstoy’s Anna Karenina, starring Greta Garbo following the 2012 Southbank success of “Faust” Live Concert Screening. Carmen Zgouras is also a Philanthropy Advisor. She is advisor to the The Andrea Bocelli Foundation, The British Red Cross International Committee and produced The Luciano Pavarotti Tribute Gala and The La Vie En Rose Gala with Annie Lennox. She also helped create the Independent Film Trust and has worked as a Special Advisor to The Oxford Philharmonic Orchestra and Outdoor Trust for The Queen’s Walkway Appeal in Windsor.
TRUSTEE, Lucinda Evans BSc (Hons)
Lucinda has an honours degree in Biomedical Science from the University of Brighton and is working in a healthcare career. She was diagnosed with lipoedema when she was 18 and uses her scientific background to support the charity in administrative roles and helping to produce technical literature.
TRUSTEE/FOUNDER, Suzanne Evans
Suzanne was diagnosed with Lipoedema in May 2011 – 35 years after her symptoms first appeared. The shock of discovering she had a genetic condition and that her long years of dieting had not just been worthless but had almost certainly made her condition worse led Suzanne to work with St George’s hospital to create Lipoedema UK.
NURSE CONSULTANT, Denise Hardy, RGN, BSc (Hons) Palliative Care Clinical Manager – Kendal Lymphology Centre
Lymphoedema/lipoedema has been the focal point of Denise’s nursing career. She has set up numerous clinics to address the obvious need for treatment in patients suffering from non-cancer related pathologies, including children and young adults. As well as running her own clinic, Kendal Lymphology Centre, she plays an active role in the British Lymphology Society (Co-Chair in 2000/2001), the International Lymphoedema Framework – as well as the Lymphoedema Support Network. Denise works tirelessly to improve treatments and research into better treatments for patients with lipoedema and has an extensive knowledge of compression garments for lipoedema patients. She plays a pivotal role in Lipoedema UK helping raise the profile of this very distressing condition.
NURSE CONSULTANT, Kris Jones, RGN, ENB 931, ENB N34, Post Graduate Diploma Lymphoedema Practice. Joint Founder & ManagerLymphCare UK
Kris started working in Lymphology in 1998 and is now a Clinical Nurse Specialist and Director of LymphCare UK Community Interest Company the first stand alone Lymphoedema Service to have spun out of the NHS. She has a long established interest in the diagnosis and management of Lipoedema and has been involved in ensuring Lipoedema treatment is recognised within service specifications. She also has experience of living with Lipoedema so brings a personal and clinical perspective. She is very pleased and excited to have recently become a Nurse Consultant for Lipoedema UK.
NURSE CONSULTANT, Mary Warrilow, RGN, BSc (Hons), QN, Joint Founder, Managing Director & Registered Manager, LymphCare UK
Mary has varied nursing experience including 23 of her 34 years nursing years working in the Community setting as a District Nurse and Primary Care Matron before specialising in Lymphoedema. Mary is Joint Founder and Managing Director of LymphCare UK a nurse led Community Interest Company and Social Enterprise based in the West Midlands that provides comprehensive lipoedema and lymphoedema management. Mary has won a number of nursing awards including the title ‘Queens Nurse’ from the Queens Nursing Institute (QNI) and is passionate about raising the profile and access to services and treatments for patients with lipoedema and lymphoedema. Mary hopes that the partnership of Lipoedema UK and LymphCare UK CIC will improve access to services and is honoured to join Lipoedema UK as a Nurse Consultant.
UK RESEARCH CO-ORDINATOR, Sherry Armstrong-Wilkinson, MBChB, BSc (Hons), RGN
Sherry joins us from an eclectic background that includes training as both a physician and a nurse. The majority of her life has been spent in Africa and she has just returned to the UK permanently from her home in Kenya. Professionally she has worked as a coroner in Cape Town, South Africa, in cardiology and infectious diseases before moving to the world of clinical research. For the past 20 years Sherry has been involved in the training and development of clinical research professionals around the world in addition to managing a HIV clinical trial across Africa. Today she provides consultancy services to a major pharmaceutical company and maintains a strategic role in the continuation of her company, Clinical Research Africa Ltd. She is passionate about driving forward early diagnosis and management of lipoedema having experienced first hand the physical and psychological effects that are the result of a 50 year wait to be diagnosed herself. Sherry welcomes the opportunity to be involved with Lipoedema UK to make a positive difference to all patients afflicted with this disease.
BOARD MEMBER, Heather Wright
Heather is a Senior Business Development Manager for Sigvaris Britain Ltd who produce compression hosiery used in the treatment of lipoedema. She is very proud to be a part of Lipoedema UK and hopes to be able to help increase diagnosis rates and raise awareness of such an unrecognised condition which affects so many women. With her experience of working within the industry who aim to help women with lipoedema and also being a lipoedema sufferer herself she hopes she will be able to help Lipoedema UK push forward with more research into the condition.
PAST TRUSTEE – Lisl Klein Ph.D., AcSS
Lisl Klein who died on 11th December 2015 gave great support to Lipoedema UK in it’s formative stages and we miss her opinions and advice. Sadly Lisl suffered from lipoedema almost all her adult life but didn’t receive a diagnosis until she was in her seventies. Dr. Lisl Klein was an organisational sociologist. Her roles included Social Sciences Adviser to Esso Petroleum Company and as a senior member of the Tavistock Institute of Human Relations. In 1990/91 she founded the Bayswater Institute and was it’s first Director.
NURSE CONSULTANT, Sandy Ellis
Sandy Ellis was Nurse Consultant and Head of Therapies at St George’s NHS Trust Lymphoedema Service. Sandy regularly diagnosed women with Lipoedema and developed management approaches specifically for Lipoedema sufferers. She provided invaluable encouragemnt and support in setting up Lipoedema UK and helped design Lipoedema UK’s Big Survey.
FOUNDING MEMBERS, Bernice Callen & Josephine Leslie-Jackson
Lipoedema UK would like to express it’s grateful thanks to Bernice Callen and Josephine Leslie-Jackson for their invaluable help in setting up Lipoedema UK in 2012.