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Lipoedema UK Featured In Health Europa

Lipoedema UK Featured In Health Europa

lipoedema-uk-0098I was delighted and honoured to get Lipoedema UK featured in the Health Europa Quarterly Issue 04 this month. Below is a quick section of the interview and article. I have included a link to the full publication at the bottom of this page. 

Lipoedema is a chronic condition whereby fat cells abnormally build up in the hips, buttocks, legs and occasionally arms of women (and, far more rarely, men), resulting in often painful pockets of fat that do not go away with exercise or dietary changes. The condition varies in appearance from woman to woman, but every woman with lipoedema suffers from a frustrating lack of awareness among the public and medical community alike.

Lipoedema has been little researched, is rarely taught and is poorly understood; as a result, it is frequently misdiagnosed as obesity or lymphoedema (swelling that occurs due to the lymphatic system not working properly) and only limited treatment options are available.

Lipoedema UK was set up in 2012 by women with lipoedema and St George’s Hospital, London, in order to educate doctors, health practitioners and the public about lipoedema and its symptoms, with a view to improving diagnosis numbers and ensuring that women get the advice and treatment they need to live well with the condition and avoid related complications.

Health Europa Quarterly speaks to the charity’s chair, Sharie Fetzer, about the support available to women with lipoedema, its relationship with obesity, and efforts in the UK to raise awareness and improve understanding.

Read the full article by downloading a free copy of Health Europa Quarterly Issue 04 by clicking here.

Impressed by you

Is a truly remarkable book by Els Brouwer and Joyce Bosman from NLNet, the Dutch network of people with lymphoedema and lipoedema.

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Els and Joyce wanted to break the taboo and show that you are allowed to be beautiful with lipoedema or lymphoedema.  In the 28 impressive personal portraits,  patients tell their story of how they deal with it together with a loved one or someone who is closely involved with them, such as a partner, mother, child, sister or therapist.  All have one thing in common,  lipoedema and lymphoedema always come uninvited into your life.   The stories are very varied, and feature children, teenagers, women and men. The reader learns what lymphoedema and lipoedema involve and the effect the diseases can have on one’s life. But the book offers more. It provides background information and an introduction by Dr Robert J. Damstra. In this way, the book becomes more than just a book of beautiful photographs. It is a work of reference.