About Us

Lipoedema UK was founded in 2012 by women with Lipoedema, and the Lymphoedema Service at St George’s Hospital in London.

Our Patrons are the UK’s leading Lipoedema expert, Professor Peter M Mortimer MD. FRCP. Professor of Lympho-vascular and Dermatalogical Medicine to St George’s and Royal Marsden Hospitals and Dr Kristiana Gordon MBBS, MRCP, CLT St George’s Hospital, London.

Our focus is to educate doctors, health professionals and the public about Lipoedema and its symptoms, so it may be diagnosed and treated earlier. 

Because Lipoedema is frequently mistaken for obesity or Lymphoedema, many women don’t get appropriate advice or treatment – a state of affairs we are on a mission to change.

Our belief is that with earlier diagnosis and treatment women can prevent developing further complications and manage their Lipoedema.

We also provide information about Lipoedema to our members and health professionals, report on research findings and commission our own research.

Lipoedema UK intend to attend all appropriate major medical conferences to represent Lipoedema UK’s and the patient’s point of view to encourage research and interest in the condition.

Through our patient surveys and research we generate a new awareness of the condition and vital statistics that improve diagnosis and understanding.

We are working on your behalf to bring early diagnosis for Lipoedema patients in the UK. We also work with renowned international experts to make a worldwide impact.

Here are some of Lipoedema UK’s recent and ongoing activities:

Lipoedema UK sponsorship of the Royal College of GPs E-learning course on lipoedema

Producing and distributing free leaflets for Lymphoedema Clinics and Allied Health Care Professionals (AHCP).

Representing patients at major UK Primary Health conferences

Raising the profile of lipoedema nurses through BJN Chronic Oedema Nurse of Year Award 2017

Collaborating with St Georges Hospital Trust, London on their genetic research programme

Authoring and advising on articles for publication in the press and medical journals

Helping sufferers learn how to exercise and stay healthy

Hosted a major international conference in 2016 on Liposuction for Lipoedema for 300+ people

Collaborating internationally with surgeons and health care professionals all across the world.

Encouraging research and better treatments to find a cure

Creating partnerships for future major international medical conferences and co-operation

Regular member’s newsletters with updates on news and events

To help us in our mission, please support us by becoming a member and if you can, offering to volunteer.