Welcome to the Lipoedema UK Website
Lipoedema is an inherited disease that makes you accumulate fat below the waist, often giving you hips, buttocks and legs that are out of proportion with your upper body. You can also get Lipoedema in the arms. You may find that your upper body and lower body are completely different sizes and that you have a lot of problems finding clothes, especially boots that fit. Your feet and hands are unlikely to be effected and to be a normal size.
Unlike the areas of the body which have normal fat which will respond to low calorie diets and exercise, areas with lipoedema don’t respond, can be very painful to the touch and usually bruise very easily.
It’s almost always women who are affected. Lipoedema is extremely rare in men, with only a handful of suspected cases worldwide. The symptoms most often develop at puberty although Lipoedema has been known to appear during and after pregnancy or at the menopause.
Although Lipoedema was first recognised in the 1940s, very little research has been done into the disease. It is in very few medical text books and rarely taught in medical schools and so few health professionals even know it exists.
As a result, Lipoedema is frequently misdiagnosed as obesity; sufferers don’t get appropriate treatment or advice; and secondary health problems such as osteoarthritis, varicose veins, lymphoedema, and eating disorders can develop.
Outside the UK, the spelling of Lipoedema can change to either Lipodema or Lipedema.
Lipoedema UK is raising awareness of Lipoedema in the UK and currently working with the Royal College of General Practitioners to train Dr’s and health care professionals to recognise and diagnose the condition. We also work closely with other international groups who are working to change the situation in their countries as ignorance of the condition is a world-wide problem.