Welcome to the Lipoedema UK Website
Lipoedema is an inherited disease that makes you abnormally fat below the waist, giving you hips, buttocks and legs that are out of proportion with your upper body. It doesn’t matter what or how little you eat or what exercise you do, the fat won’t budge. And Lipoedema isn’t just disfiguring – it can be very painful too. You can also get Lipoedema in the upper arms.
It’s almost always women who are affected. Lipoedema is extremely rare in men, with only a handful of suspected cases worldwide. The symptoms usually develop at puberty although Lipoedema has been known to appear during and after pregnancy or at the menopause.
Although Lipoedema was first recognised in the 1940s, very little research has been done into the disease. It isn’t in medical text books or taught in medical schools and so few health professionals even know it exists. As a result, Lipoedema is frequently misdiagnosed as obesity; sufferers don’t get appropriate treatment or advice; and secondary health problems such as osteoarthritis, varicose veins, lymphoedema, eating disorders and disability develop all too frequently.
Outside the UK, the spelling of Lipoedema can change to either Lipodema or Lipedema.
Lipoedema UK raises awareness of Lipoedema, advocates better treatment and funds research.