Welcome to the Lipoedema UK Website
Charity No 1157716
Lipoedema UK is the UK’s charity for a medical condition called Lipoedema, also spelt Lipedema (in the USA).
Do you suffer from the following?
– Excess weight on your legs
– Heaviness and discomfort of the legs
– Your upper body and lower body are completely different sizes making clothes shopping very difficult
– You have a small waist, but large hips and thighs
– Your excess weight does not include your feet or hands
– You can lose weight from your upper body but not your lower
– Your lower body bruises easily
-Some members of your family are or were a similar shape
Then you may be suffering from Lipoedema.
Lipoedema is is a condition that makes you accumulate fat below the waist, often giving you hips, buttocks and legs that are out of proportion with your upper body. It can also affect your arms.
78% of Lipoedema sufferers questioned in Lipoedema UK Big Survey 2014 stated that they developed symptoms between the ages of 18-25 but only 7% received a diagnosis at that time. Many people take decades to realise that they have Lipoedema and are constantly dismissed by the medical profession over the years and told that the excess fat ‘Is their own fault’.
It is believed that 11% of the female population may suffer from Lipoedema.
(Foldi F, Foldi M 2006 ‘ Lipoedema’)
One of the most frustrating things about lipoedema is that the vast majority of doctors and nurses aren’t trained to recognise lipoedema, making it difficult to get a diagnosis.
Lipoedema UK’s mission is educate to all UK doctors and healthcare professionals to recognise lipoedema in the early stages so that everyone with lipoedema receives appropriate advice and quality care.
Lipoedema UK support our members to work with their GPs and healthcare professionals to find treatments available in their area.
Lipoedema UK’s conferences provide our members with the latest information from internationally renowned specialists, surgeons and researchers as well as practical advice and inspiration on exercise and compression.
Lipoedema UK are working with St Georges Hospital, London on the latest genetic research project.
Lipoedema UK are working with the Lipedema Project to bring the next International Lipoedema Symposium to London in 2017. This is vital to encourage new international research.
Your support for Lipoedema UK will help us achieve our aims.